Well, the birthday has come and gone, thank goodness. It started out a little rough for me but after an attitude adjustment and so many greetings from my facebook fans, my spirits were uplifted. I love the PWS community on facebook. I do not know how I survived without them. I think I was a little depressed this year. I turned 55 and my mother died from melanoma when she was 55 and after almost dying this summer, it made me stop and think. Then I realized I should be celebrating the fact that I was alive to see this birthday. On the upside, I qualify for a senior drink at McDonald's now, so anytime I want a Coke, I can just walk up the street and get one for fifty cents. My oldest daughter surprised me with a birthday cake late last night that she had bought at Wal-Mart (a turtle cake - chocolate and caramel). I hid it but cut Audrianna a small piece tonight and she wanted to know if there was a real turtle in it. Now I have to find another place to hide it. It is so rich and the frosting is like chocolate heaven. I feel a little guilty since I just read a blog by a friend of mine and she was talking about increasing the amount of veggies she eats.
Audrianna is still loving her new teacher and it isnt taking too much encouragement to get her ready to go in the morning.
This blogging stuff is still kind of new to me and I am not really sure why anyone would want to read this stuff but I'll keep up with it for now.
Tuesday, November 16, 2010
Sometime in the middle of the night, Audrianna woke up stressing about Thanksgiving. She wants to have Thanksgiving dinner with her daddy and grandmother next door, but she also wants to have Thanksgiving at my son's house with his family (my daughter-in-law is an EXCELLENT cook). She wanted to tell her dad not to have Thanksgiving dinner until after Thanksgiving because if she is not there when he has the dinner, she knows there will not be any left because her "daddy eats a lot". I kept reassuring her that I would work something out and after a while, she calmed down and went back to sleep. These holidays are getting more stressful as she gets older. Halloween freaked her out for over a week.
I dread the Thanksgiving holiday not only because of all the food but because it is so hard to get her back in the routine of going to school. The Monday after will probably not be a good one in this house but I am hopeful. Heaven help me after the long Christmas break.
One good thing is that she is really excited about her new teacher. Yesterday she woke up and didnt want to go school and finally we had a race to get her clothes on and that worked wonders. We did the same race today and she was so excited to be the WINNER. What we do is call her dad, who lives next door, and I say "On your mark, get set, go". She has to have her clothes on by the time he comes over and she has won two days in a row. This seems to work (hopefully for a while). Nothing seems to last for long.
She has an appointment next week with her regular doctor so I can get referrals to the pediatric endocrinologist, maybe orthopedist, eye doctor, and I am sure there is something else I was going to ask about. I am going to start the process (again) to get her on growth hormone. She likes to say "taller shots". The pediatric endocrinologist in Lawton has never prescribed GH for a child with PWS and I think she is a little scared. The first time we went to see her about it, she told me GH could kill her and that there was a very brave doctor in Arkansas who gave growth hormone to his patients with PWS, emphasis on the word brave. I am going to ask her to contact Dr. Miller, who everybody swears by. Hopefully, we will get the ball rolling. I also think I am almost strong enough physically to begin the Make A Wish process.
Well, I better get off the computer and do some work.
Saturday, November 13, 2010
I promise to come up with better titles. I am not even sure how to get back to my blog. I had to go to my facebook page and click on the link there. I am sure I will figure this out sooner or later. This is Saturday, so I have my hands full with Audrianna so not much time for blogging. She demands a lot of attention and I have promised myself and her that I will not spend too much time on the computer when she is home. I feel like I have been a little too involved with facebook and bargain shopping. I start out weeding through my e-mails and then I end up in cyberspace, shopping, playing scrabble on facebook, etc. Each email leads me somewhere else. I'm signing off now to be the mom. More on Monday. I hope she won't want to stay home. Funny thing though, I thought yesterday was Monday and I called to schedule a ride for Audrianna's appointment on Tuesday. The dispatcher said "Ma'am, we are not open tomorrow". I asked him what holiday it was. He said Saturday. I was so embarrassed.